Mayo Trip

Another good day at Mayo (Devin may not have thought so but we accomplished a lot). Most of the tests were Urology related. Checking to make sure that Devin's system is working to the point that it will NOT cause Kidney failure down the road. For those technological people, they did a urine test, VCU (Urinary X-rays), Urodynamic Study, Ultrasound of the Abdomen and a serious of x-rays of his feet.

We also saw Dr. Sherilyn Driscoll, a Physiatrist in the Pediatric Rehabilitation area. Although Devin was sleeping going into that appointment, by the end of it, he had given her a good idea of what he could do. She was considering twister straps to help with some of Devin's foot turning inward, but recommended we see a PT to confirm this. We extended our day at Mayo in order to see the PT. In the discussion with 2 of the PTs, we touched on all the concerns that have ever been raised by doctors and our own, Birth to 3, PT. I think that we are heading down the right path. Hopefully, having all of these concerns under one system will help to generate discussion as to what is necessary for Devin.

It really looks to me, like most of the discussion comes back to Devin having a lower leg surgery. This surgery will untwist the Tibia. The twisting of the Tibia is common in children before they begin to stand and walk, but it is unlikely that Devin's will self correct because of his muscle imbalance due to Spina Bifida. The concern is that if they perform this surgery too early, it will reoccur. Although Devin has made great stride in his standing and walking, the twisting of his feet does seem to be getting worse instead of better. I am affraid that if we do not correct this now, that he will begin to have problems with his knees as well.

Devin, standing and walking by himself.

Allie keeping the walker straight so that Devin can walk.

We hope to have more answers after the Spina Bifida clinic on July 13.